I AM NOT A SYNDROME - MY NAME IS SIMON

The medicalcommunity said that Simon was incompatible with life but the Crosier family refused to accept that diagnosis. I Am Not a Syndrome - MyName is Simon is the moving and gripping story of a baby diagnosed withTrisomy 18, a genetic disorder in which a person has a third copy of materialfrom chromosome 18. Produced byindependent book publisher All Star Press, I Am Not a Syndrome - My Nameis Simon details the struggle of Sheryl s son Simon from the early stagesof pregnancy to his life here on earth. During thisdifficult time, Sheryl confronts a sometimes difficult andindifferent medical system to advocate on Simon s behalf. This is a trulyinspirational story with a strong pro-life message. I longed totell Simon’s story of hope, faith, love and the peace which God grantedme, explained Sheryl. I write this book to demonstrate thatour children are not a label and are not defects! They have a name andidentity. They are children of God. Born on September7, 2010, in St. Louis, Missouri, Simon Dominic Crosier was diagnosed withTrisomy 18 and lived for three memorable months. Despite his disabilities,Simon had a huge impact on all who came into contact with him. The book isabout Simon’s short and meaningful life, his family and his wonderfulcaregivers. I Am Not a Syndrome - My Name is Simon documents thefamily’s battle to advocate for their precious son against an oftentimesindifferent and callous medical community. Strugglingwith the fragility of Simon’s life was one thing. However, struggling with thepopular pragmatic culture that measures human life in terms of dollars ratherthan dignity, is quite another. Yet, all along the way, again and again, Sheryland Scott discovered and were made disciples of Life. This story celebratesboth the pain and the joy of love! stated Rev. Robert J. Hermann, BishopEmeritus in Residence, St. Louis Archdiocese of St. Louis. The Crosierfamily had to overcome challenges put in their way by m